Agios Pharmaceuticals announced the launch of a multi-stakeholder advocacy advisory council for hemolytic anemias including PK deficiency, thalassemia and sickle cell disease. The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and immense quality of life concerns, to generate published evidence and meaningful solutions that are relevant across disease areas and to create a platform to raise awareness about the needs and experiences of people touched by these diseases.
Published first on TheFly
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